Any questions? We've got you covered!



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The Polyposis Registry

Have any questions? The Polyposis Registry look after people with a polyposis syndrome and their relatives throughout the patient journey. They also provide education for healthcare professionals and the public and actively carry out research.

 

Interested? Click the button below to find out more!


The Patient Journey

What happens following referral? Click the links below provided by the PolyPosis Registry for more information on what your Polyposis journey could look like.


Q&A panel at St Mark’s Information Day

Take a listen to the latest Q&A session from 2019’s Information Day. Click here


St. Marks Information Day Research 2019

Want to hear about all of the latest research happening behind the scenes in 2019? Click here


Young people

A message from Dr. Warren Hyer, Consultant Paediatrician and Consultant Gastroenterologist at St Marks Hospital. Click here


Feeling dehydrated? Have some E-Mix!

St Marks famous Electrolyte Mix may be the one for you! Click here


Bowel Management with FAP

Ellie Bradshaw (CNS Biofeedback), discusses discuss some dietary modifications which can be used to regulate bowel function and strategies for bowel management such as managing frequency, urgency and incontinence. Click here


Need help with nutrition?

Take a look at PolyPeople member Rachel's suggestions by Click here


What is a Desmoid Tumour?

Everything you need to know about Desmoid Tumours! Click here


Useful links:

The Polyposis Registry:
www.polyposisregistry.org.uk/about

Patient Info:
patient.info/doctor/bowel-colonic-polyps-pro

NORD:
rarediseases.org/rare-diseases/familial-adenomatous-polyposis

The FAP Gene Support Group:
fapgene.com/index.html

HealthWatch:
healthwatch.co.uk

PALS:
https://www.nhs.uk/common-health-questions/nhs-services-and-treatments/what-is-pals-patient-advice-and-liaison-service/

Inside Out Stoma Support Group:

www.iossg.org.uk

(Please be aware we are not responsible for the content on any external websites to which we provide links)

 
 
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