Any questions? We've got you covered!
Since my pouch surgery, I have had a very noisy tummy which is very embarrassing. Any tips of how to help with this?
The Polyposis Registry
Have any questions? The Polyposis Registry look after people with a polyposis syndrome and their relatives throughout the patient journey. They also provide education for healthcare professionals and the public and actively carry out research.
Interested? Click the button below to find out more!
The Patient Journey
What happens following referral? Click the links below provided by the PolyPosis Registry for more information on what your Polyposis journey could look like.
Q&A panel at St Mark’s Information Day
Take a listen to the latest Q&A session from 2019’s Information Day. Click here
St. Marks Information Day Research 2019
Want to hear about all of the latest research happening behind the scenes in 2019? Click here
A message from Dr. Warren Hyer, Consultant Paediatrician and Consultant Gastroenterologist at St Marks Hospital. Click here
Feeling dehydrated? Have some E-Mix!
St Marks famous Electrolyte Mix may be the one for you! Click here
Bowel Management with FAP
Ellie Bradshaw (CNS Biofeedback), discusses discuss some dietary modifications which can be used to regulate bowel function and strategies for bowel management such as managing frequency, urgency and incontinence. Click here
Need help with nutrition?
Take a look at PolyPeople member Rachel's suggestions by Click here
What is a Desmoid Tumour?
Everything you need to know about Desmoid Tumours! Click here
The Polyposis Registry:
The FAP Gene Support Group:
Inside Out Stoma Support Group:
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